012 Improving the transition process for young people with life-limiting conditions
نویسندگان
چکیده
منابع مشابه
Short break and emergency respite care: what options for young people with life-limiting conditions?
BACKGROUND Service providers face difficult decisions about how best to develop services for the increasing numbers of young people with life-limiting conditions who require palliative care. OBJECTIVE To explore alternative short break and emergency respite care options to children's hospice care. METHODS A two-phase evaluation with young people, families and professionals. Phase 1: qualita...
متن کاملChallenges and 'obstacles': reframing our perspective on the transition into adulthood for young people with life-limiting and life-threatening conditions.
Young people with life-limiting conditions (LLCs) and life-threatening conditions (LTCs), diagnosed in childhood and presenting with palliative and complex healthcare needs, often have diagnoses congenital in aetiology and with complex multi-system and neurological manifestation. Their care needs, both medically and socially, are largely unfamiliar to adult palliative care services, traditional...
متن کاملComparing routine inpatient data and death records as a means of identifying children and young people with life-limiting conditions
BACKGROUND Recent estimates of the number of children and young people with life-limiting conditions derived from routine inpatient data are higher than earlier estimates using death record data. AIM To compare routine inpatient data and death records as means of identifying life-limiting conditions in children and young people. DESIGN Two national cohorts of children and young people with ...
متن کاملHow many children and young people with life-limiting conditions are clinically unstable? A national data linkage study.
OBJECTIVE To determine the clinical stage (stable, unstable, deteriorating or dying) for children and young people (CYP) aged 0-25 years in Scotland with life-limiting conditions (LLCs). DESIGN National cohort of CYP with LLCs using linked routinely collected healthcare data. SETTING Scotland. PATIENTS 20 436 CYP identified as having LLCs and resident in Scotland between 1 April 2009 and ...
متن کاملEnd of life care for infants, children and young people with life-limiting conditions: planning and management: the NICE guideline 2016.
Essential facts According to the Royal College of Paediatrics and Child Health, the UK has one of the worst child mortality rates in western Europe, with more than 2,000 children and young people dying in 2012. In addition, it is estimated that about 50,000 children and young people in the UK have a life-limiting condition that may need palliative care.
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ژورنال
عنوان ژورنال: BMJ Supportive & Palliative Care
سال: 2013
ISSN: 2045-435X,2045-4368
DOI: 10.1136/bmjspcare-2013-000591.12